Do you reside somewhere on the autism spectrum? In the near future, you may not.(Theautismnewswire) and The New York Times

Benedict Cary Autism Article NY Times

http://www.theautismnewswire.com/NewsITems.aspx?newsID=954

Benedict Cary Autism Article NY Times
Mary Meyer, right, of Ramsey, N.J., said that a diagnosis of Asperger syndrome was crucial for her daughter, Susan, 37.

I found this interesting and troubling article recently from Theautismnewswire–>

One of the mental conditions facing major emendations in its D.S.M. definition is autism. If the changes go through, a recent analysis suggests that the rate of official diagnosis for autism, and related disorders like Asperger syndrome, could plummet. And that, some people worry, could be bad news for those marginalized by the new diagnostic criteria.

The revision of the D.S.M. puts the APA in the unenviable position of having to draw what the New York Times calls “the line between unusual and abnormal” in relation to mental disorders; in the case of autism, the fact that symptoms are widely believed to manifest themselves along a “spectrum” of class and severity makes the situation even more difficult to navigate. According to the Times:

At least a million children and adults have a diagnosis of autism or a related disorder, like Asperger syndrome or “pervasive developmental disorder, not otherwise specified,” also known as P.D.D.-N.O.S. People with Asperger’s or P.D.D.-N.O.S. endure some of the same social struggles as those with autism but do not meet the definition for the full-blown version. The proposed change would consolidate all three diagnoses under one category, autism spectrum disorder, eliminating Asperger syndrome and P.D.D.-N.O.S. from the manual. Under the current criteria, a person can qualify for the diagnosis by exhibiting 6 or more of 12 behaviors; under the proposed definition, the person would have to exhibit 3 deficits in social interaction and communication and at least 2 repetitive behaviors, a much narrower menu.

If the proposed changes come into effect, an analysis conducted by Yale researchers Fred Volkmar, Brian Reichow and James McPartland indicates they could have a dramatic impact on everything from diagnosis rates (some estimates indicate that autism diagnoses have mushroomed to one child in 100 in recent years), to the ability for many people — people who presently reside somewhere on the autism spectrum of disorders — to access health, educational and social services.

“Our fear is that we are going to take a big step backward,” said Lori Shery, president of the Asperger Syndrome Education Network. “If clinicians say, ‘These kids don’t fit the criteria for an autism spectrum diagnosis,’ they are not going to get the supports and services they need, and they’re going to experience failure.”

For more information on this article click here for the original story from The New York Times By BENEDICT CAREY
Published: January 19, 2012
–>
http://www.nytimes.com/2012/01/20/health/research/new-autism-definition-would-exclude-many-study-suggests.html?_r=3&src=tp

A thanks to http://www.theautismnewswire.com/ for an article on us!!

It is in our genes, Autism..

http://www.theautismnewswire.com/NewsITems.aspx?newsID=944&utm_source=Autism&utm_campaign=5000e5c66b-20120121&utm_medium=email

I appreciate that The Autism News Wire did a recent article on us.

We are trying to make a difference for autism and can not do it alone.

Please check them out, their nice content.

Here is a summary:–>

I dream of establishing a national organization like the American Heart Association or American Cancer Society to make living on the spectrum better for those with autism related disorders. Utilizing my knowledge and passion for technology with my personal experience and interest in autism, I launched https://technewszone.com, on January 11, 2011 .

We are a tech-focused state nonprofit. As we get funded we intend to help those on the autism spectrum by using technology-tablets and related computer technology plus the gift of music and the arts, to make the lives of people with autism better, and to support their families and the educational facilities that serve them.

We have a unique approach, view point and ideas.

Our Plan:

Our intent is to give the gift of technology through donated tablets and along with proper training to children and young adults with autism, their families, and the educational programs and schools that could make use of them. We also plan to fund applications to use with the technology.

Tablets are a very kinesthetic device which seems to make learning easier for many people with autism. Tablets like Apple iPads aid in education and improve the level of involvement in many aspects of their lives. However, a decent tablet runs $400-$800 which is very expensive for most families of people with autism.

Our second intent is to give the gift of music and the arts. Schools are very short on funding especially for the arts and music. Most parents of kids with autism cannot afford instruments, band trips, choir events and other arts materials. We want to help.

We will donate musical instruments to people with autism and education to improve quality of life. In addition, we will give the resources to provide help to theatre programs in both private and in public schools, as well as other arts that accept people with autism in their programs. We strive to promote inclusion and acceptance.

In order to further the quality of life for people with autism we want to expose them to cultural events. We will donate tickets, to musical events, theater, and other arts to enrich their lives.

I feel that many people with autism are talented in the arts and music. Even if not talented in the arts, I feel they can definitely benefit from the exposure to arts, music and technology.

A version of this article was originally published on The Autism Spot, an excellent resource for autism related topics.

http://www.autismspot.com/blog/Guest-Piece-%E2%80%93-Autism-Advocacy-and-Technology-News-Zone

It is in our genes, Autism..
It is in our genes, Autism..